I watched a plane in the
air fly by and I immediately was reminded on how amazing we are as
people. We are intelligent. Look how far we have come. How we evolved
throughout these years. From traveling great distances on horses to
flying. From the first typewriter now to this. It's truly
astronomical. While watching the plane pass while knowing it was
holding hundreds of people above me it reminded me about the trust we
have in each other. In our chosen professions. We trust one hundred
percent when we seek medical help, when we're passengers, when we
outwardly seek help and believe in confidentiality. We believe in
each other. Back within that first week in June when we were turned
away not once but four times from emergency when my husband was
clearly so ill, so sepsis was that moment I lost trust in our
medical system. Even now (today) as my husband is undergoing a full
MRI (October 28th) and while five months later still on
daily IV with escalating white cell counts, weekly blood tests,
chronic spinal pain, heart issues and TIA's (mini strokes that he
takes simple aspirin for) has halted his quality of life. He looks
much better, he has gained weight and strength but we still don't
know what his future looks like. We're heading into our sixth month
and he can't work, he wouldn't be able to catch that plane and enjoy
a vacation. He can barely sit for long periods of time. He suffers
every minute of his day while trying to maintain that father and
husband figure while pushing through that chronic pain, those
periods of extreme exhaustion and bouts of temporary paralysis from
poor circulation. He lacks sleep and while struggling to maintain
some normalcy, some happiness, my husband is mentally stressed and
worried about our future. We continue to believe that he will be a
MRSA survivor.... but we constantly question at what cost. Spinal
pain is the worst pain someone can chronically have. It effects
absolutely everything. When I was doing MRSA research I found out
that time is an essence, it's a deadly quickly spreading infection.
So....that first week while being turned away repeatedly from
emergency, while begging for a simple urine or blood test it resulted
in "what exactly" is the question? No apologies. I wanted to go to the news, the news
is fully aware of our story however we are currently waiting to see
if we have a law suit. The problem is, there is so many unknowns.
Honestly, the future I know will be complicated and compromising. I
personally believe the medical negligence we received warrants some
sort of reprimanding. There was fault. The medical system can hide,
blame or continue to say that it was easy to misdiagnose however
there wasn't a physical examination in the first place except for the
obvious, an opinion. A judgment. That landed my husband in ICU. So as
we wait, wonder and hope for better news from his full MRI today –
I'm still sick to my stomach that the intelligent professionals that
we trusted broke that. It wasn't a simple mistake. No. You don't turn
away someone that can't barely walk, talk and is pushed out of
emergency by his wife while in septic shock with no tests or
treatment. You don't tell that wife we're not admitting your husband
today while she is in tears and is at a loss of what to do with him.
No. I worked in first aid for years. One of the first things I
learned was not to judge. You do your A B C's. You fully examine, and
do a RBS. (Rapid Body Survey) You address every complaint. You take
the appropriate tests. AND jeeze, blood work and urine samples are easy and usually instant. We are heading into our sixth month. I feel saddened
by everything I've seen this man go through and still goes through. As
we don't know his future, or if he can endure working as a mechanic
anymore. Will he ever car race again? I have to think about what can I do. For me, it's not that
easy. I need time. So I've proceeded to make a two year goal. I have
applied to go back to school in hopes that I can obtain a Social Work
career part time come 2018. Financially right now is this the right
decision? Is it the right decision while my husband is sick? Having
many children under my wing is this the right decision? I don't know
except I have too. I want too for my family. For myself. What I do
know is our current ongoing situation has changed us. On the positive
side, we continue to live, love, and experience life as much as we
can together. We understand how short life is, and on how quickly
within seconds it can change. So there isn't time to waste. I'm
grateful we are all intelligent, and that technology has expanded
from just typewriters. That way I can share our experiences, I can
explain to you to trust your extincts when it comes to your precious
health. We are all intelligent but mistakes are made. And when those
mistakes happen, we should be accountable for them. Simple. As that
plane disappeared miles away in the distance I was in awe on how we
trust our lives in others hands, and so we should. However always
keep in mind to follow your heart, those gut feelings and to
understand that your life is one hundred percent in your hands, not
always in the hands of others. Well... unless you're unconscious or in
an airplane! Then continue to keep your eyes closed and hang on
tight! But if you're heading into an emergency department and you know something
isn't right, you know it's just not gas – sit down and don't leave
until you're properly evaluated or thrown out. I regret I didn't do this for my husband but what I can do now is to share our experience and advocate for others. Make sure you're not treated like we were. It can equal life or death.
Just a big unique crazy family consisting of twenty individuals and three dogs! It's a day by day kinda BIG!
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"She's a rebuild"
It's been three years since I wrote. Within those three years I've lost myself. I stopped writing. I stopped crafting. I stop...
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It doesn't matter what we all believe. Sickness and death comes. We can all say, “Not my family” but we literally have no control....
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It's been three years since I wrote. Within those three years I've lost myself. I stopped writing. I stopped crafting. I stop...
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All I can say is we had a wonderful week of saving Yoda from the grips of enhangment! A word I made up! Yoda with his buddies was hanging on...
I hear your frustration and disbelief of the medical system. Doctors and the other medical professionals are people too, and they do make mistakes. Yours seems like a cumulation of many errors though. Social work will probably enable you are your family to life a fairly comfortable life. Will your husband be able to take over the running of the home while you bring in the money? I don't know your family situation well enough to know if some of the older kids can be of help. Anyway praying for you to finish school rapidly and to figure out how this will al work out.
ReplyDeleteThank you Kristine for your continual support. I know professionals are people too and every one makes mistakes. It's accountability that know one has confessed too. A simple apology would have sufficed. And really, it's not about that anymore, I just want to make sure it happens to know one else. And that people follow their instincts concerning their or their loved ones health because Doctors make mistakes. A particular doctor that keeps coming back to my attention actually needed some consequence in the way he handled and discharged us. Horrible. Anyhow hindsight now, I just hope it doesn't happen again to us or someone else. That's why I re-highlight the scenario. My course I've applied to I can do online, I homeschool anyway so I anticipate this shouldn't be a problem. A plan I know I can with commitment and dedication.
ReplyDeleteHey honey, I am so sorry for this terrible mistake that has costed your family so much. This is wanderingroots__ on Instagram. I, too, have been screwed over by the medical field. I have had misdiagnosis, wrongfully been prescribed medication when I was weak/young/vulnerable and I will now forever suffer from the careless backlash of medical malpractice. I wholeheartedly agree that people should listen to their gut when it comes to your health... All the money in the world can't buy a healthy immune system or a brand new body with all new organs. I will say prayers for your husband, and I look forward to seeing his progression with health in the future. (I am hopeful that he will survive and life will be a little more easier as time goes on.)
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